Patient-reported outcomes in vasculitis
Janagan, Shalini Austin, Keziah Baker, Charlotte Day, Julia Robson, Joanna
Janagan, Shalini
Austin, Keziah
Baker, Charlotte
Day, Julia
Robson, Joanna
Glos Author
Date
2023-06-03
Journal Title
Subject
Type
Journal Article
Collections
Abstract
Systemic vasculitis encompasses a group of multisystem disorders; both the diseases and the treatment strategies can have a significant impact on a patient's health-related quality of life (HRQoL). Using patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) to evaluate the patient's view of their condition, treatments, and healthcare journey is essential to the patient-centered care approach. In this paper, we discuss the use of generic, disease-specific, and treatment-specific PROMs and PREMs in systemic vasculitis and future research goals.
Citation
Crawshaw, H., Janagan, S., Austin, K., Baker, C., Day, J., & Robson, J. C. (2023). Patient-reported outcomes in vasculitis. Best practice & research. Clinical rheumatology, 37(1), 101829. https://doi.org/10.1016/j.berh.2023.101829