Statement from the frontal fibrosing alopecia international expert alliance: SOFFIA 2024

Background: As the incidence of frontal fibrosing alopecia (FFA) continues to rise, there is a need for an optimal treatment algorithm for FFA. Objective: To produce an international consensus statement on the treatment modalities and prognostic indicators of FFA. Methods: Sixty-nine hair experts from six continents were invited to participate in a three-round Delphi process. The final stage was held as a virtual meeting facilitated via Zoom. The consensus threshold was set at ≥66%. Results: Of 365 questions, expert consensus was achieved in 204 (56%) questions following completion of the three rounds. Three additional questions were included at the final meeting. The category with the strongest consensus agreement was disease monitoring (9; 100%). Questions pertaining to physical therapies achieved the least category consensus (15; 40%), followed by systemic therapy (45; 43%). Limitations: The study lacked sufficient representation from Africa and South America. Conclusion: SOFFIA highlights areas of agreement and disagreement among experts. Robust research is warranted to provide evidence-based treatment recommendations.

Citation

Meah, N., Li, J., Wall, D., York, K., Bhoyrul, B., Bokhari, L., Coulthard, L., Asfour, L., Abraham, L. S., Asz-Sigall, D., Bergfeld, W. F., Betz, R. C., Blume-Peytavi, U., Callender, V., Chitreddy, V., Combalia, A., Cotsarelis, G., Craiglow, B., Dhurat, R., Dlova, N., … Sinclair, R. (2025). Statement from the frontal fibrosing alopecia international expert alliance: SOFFIA 2024. Journal of the European Academy of Dermatology and Venereology : JEADV, 10.1111/jdv.20833. Advance online publication. https://doi.org/10.1111/jdv.20833

DOI

10.1111/jdv.20833

URI

https://hdl.handle.net/20.500.14709/458

Usage rights

CC BY 4.0

License

https://creativecommons.org/licenses/by/4.0/